Pseudo Tumor Cerebri is what the neurologist is using at the moment.
I saw Dr. Levy one of the partners in the neurological group I go to. My regular guy was not able to fit me in. I went today and he is not happy. My exam was incredibly thorough. I have a whole litany of problems, more than I even realized before he examined me.
He did one funky test where I had to close my eyes and smell something out on first my left nostril then the right one. I thought at first it was compost, then with the right nostril it smelled like a wonderful cup of perfectly made coffee. My hearing in my left ear is completely different from the right side. My strength on my left side in general is 50% worse than the right. I drag my left leg and if not careful my right one drags also. If I do not have a counterbalance at times I end up walking backwards when I want to go forward. My arms go tingly and numb.
I have been getting massive headaches that stab at my eyes and my sight is narrowing. If I am not better with the headaches then on Monday I have to get a blood patch done.I may have ruptured the scab healing where the hold was for the spinal tap. Yuck. The tap was bad enough.
Dr. L. is sending me for more tests. Hesmiled at me after all the concern he showed and he said no one on his watch dies, that he won't allow it. I like this guy, this doctor who really want to help or if he can't as he said he may not be able to cure things, he can help to make my life as comfortable and productive as possible.So smile with me my friends...the sun will be out in a few hours and we can go fight the good fight all over again.
Everyone one of you keep me grounded and out of my shell.
Love you all.
Friday, October 06, 2006
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