Finally, just about 36 hours until I leave for my cruise.
I CAN'T WAIT.
Carnival ship Miracle.
Two days at sea
San Juan: going on a tour of the island for three hours
St. Thomas: Shopping in the AM, beach and snorkling in the PM
Tortola: don't know yet. I wanted to do some more snorkling but the shore excursion costs a lot of $$$
Two days at Sea.
I plan on doing everything I can. It is a wonderful new experience and I am so excited. I packed my bags, crammed in a ton of clothes and such into an expandable overnighter and a soft duffle bag.
Pictures and such when I return in June.
*****************
I am finally feeling better from the Spinal tap. Two days of post tap migraines is enough.
I have energy to burn. My eyes are not hurting and as a matter of fact, I actually had to use sunglasses today because my eyes were taking in and processing so much light. YIPPIE for Lumbar spinal taps. (yeah, right).
**********
Oh, get this, I was speaking with Mitchell the other day and out of the blue he announces that the tennants that he has in his house upstate will be moving out in June and then we can start going up on weekends...
Huh? When did it become we? Not that I mind. I like the house and the area is great for walking, but, Huh?
*****
Jazz is staying with Georgiana starting tomorrow and so is now making me play with him. So.
To all have a great two weeks.
Love ya guys
Friday, May 25, 2007
Friday, May 18, 2007
Monday, May 14, 2007
Advice
I broke my own rule on ck but I felt I needed to help
"Hi there,I am more comfortable Pm'ing than thread posting.
I hope you do not mind but I looked over your food diary a bit.
I wanted to see if I could get an idea of why you came back prediabetic.
I want to preface what I am writing by saying that I too came back pre diabetic over a year ago, but due to nutritional education, both thru my doc and on my own, I am no longer at risk of getting diabetes.
I have struggled for almost 40 years with weight and was in such a bad way physically, that instead of resigning myself to death by age 50 I had WLS and had the gastric band put in on Jan 24, 2006. I have dropped 66 pounds so far and am eternally grateful for modern medicine, but I do not wish it for anyone else unless there is no other way.
That said, here is what I noticed:
Your sugar content is too high. Yes, you are where CK wants you to be with carbs but too many are coming from your desserts: ie. the cold stone creamery stuff. This not only will kick up the sugars to unhealthy levels but it is probably a major contributer to your cholesterol levels that are showing on ck: ie 393 for the last week. Normal is around 100 to 150.
You can customize your food diary to show you how many sugars and cholesterol and sodium (which looks just right by the way) for each of the foods you enter. This is what I did and it helped me greatly to make better choices.
I would also try and add to your diet more and different types of fish and seafood.I discovered in the past two years: Tilapia or St. Peters Fish, Salmon (great for Omega 3's which help the body heal itself), Halibut (great but is expensive) Tuna Steak, as well as crab and clam meat, which I put with romaine lettuce and vegis, adding a squirt of real lime and lemon to.
I now have fish 4 times a week and maybe once a week red meat. I no longer eat a whole egg, rather I eat the whites and give my dog the yolk (dogs do not have cholestrol issues and the yolk is where all the cholesterol is) Stay away from fried fish and seafood though. Too high in fats and cholesterol.
Add more fresh fruits for the sugars and fresh vegis. These will help the body work better and ahem, clean out the system more efficently.
Finally, up the exercise a bit. Every day, increase by a minute or so. Get the heart pumping a bit. Break a sweat. This will get the metabolism moving.
I give this advice because this is what I have had to learn to do on my journey to health and joy.I hope it will help and know I mean it with care and concern for you.
Have a joyous day
Sandra
"Hi there,I am more comfortable Pm'ing than thread posting.
I hope you do not mind but I looked over your food diary a bit.
I wanted to see if I could get an idea of why you came back prediabetic.
I want to preface what I am writing by saying that I too came back pre diabetic over a year ago, but due to nutritional education, both thru my doc and on my own, I am no longer at risk of getting diabetes.
I have struggled for almost 40 years with weight and was in such a bad way physically, that instead of resigning myself to death by age 50 I had WLS and had the gastric band put in on Jan 24, 2006. I have dropped 66 pounds so far and am eternally grateful for modern medicine, but I do not wish it for anyone else unless there is no other way.
That said, here is what I noticed:
Your sugar content is too high. Yes, you are where CK wants you to be with carbs but too many are coming from your desserts: ie. the cold stone creamery stuff. This not only will kick up the sugars to unhealthy levels but it is probably a major contributer to your cholesterol levels that are showing on ck: ie 393 for the last week. Normal is around 100 to 150.
You can customize your food diary to show you how many sugars and cholesterol and sodium (which looks just right by the way) for each of the foods you enter. This is what I did and it helped me greatly to make better choices.
I would also try and add to your diet more and different types of fish and seafood.I discovered in the past two years: Tilapia or St. Peters Fish, Salmon (great for Omega 3's which help the body heal itself), Halibut (great but is expensive) Tuna Steak, as well as crab and clam meat, which I put with romaine lettuce and vegis, adding a squirt of real lime and lemon to.
I now have fish 4 times a week and maybe once a week red meat. I no longer eat a whole egg, rather I eat the whites and give my dog the yolk (dogs do not have cholestrol issues and the yolk is where all the cholesterol is) Stay away from fried fish and seafood though. Too high in fats and cholesterol.
Add more fresh fruits for the sugars and fresh vegis. These will help the body work better and ahem, clean out the system more efficently.
Finally, up the exercise a bit. Every day, increase by a minute or so. Get the heart pumping a bit. Break a sweat. This will get the metabolism moving.
I give this advice because this is what I have had to learn to do on my journey to health and joy.I hope it will help and know I mean it with care and concern for you.
Have a joyous day
Sandra
Pain redux
F'ing Ouch. I still have a week before my next spinal tap and I can't stand the waiting.
Migraines are worse than gunshots I believe. I am back taking Fueroset three times a day for the pains.
I wish I could live in water. Then my damned back would not hurt. I am so crippled today from the herniated disc I can't even stand up straight. I keep ice on it half the day and take the morphine the other half.
I am not sad, just so damn frustrated and angry at the uncertainties.
Pain just makes your life hell.
And my poor Jazz is such a sweetheart but I feel so angered that I can't run with him or like today, take him on a long walk. My aide took him out twice so he got the exercise but I want to be the one to do it.
After the tap though, two days of massive migraines and then free of pain for another two months. Well free of pain in my neck and head. My herniated disc, welll that is a crap shoot.
The therapy in the pool is wonderful and I am back to swimming twice a week, doing the PT and then laps. I am up to 16, almost back to a quarter mile.
If I did not have to get out of the pool, life would be easier. I get out and my left foot goes tingly and then numb. ARRGH!
Then, of course, I get really down on it all and binglet myself into coma with ice cream Low fat and low sugar, but dang, a quart goes down too easily. Well, not that easily, if the gastric band has its way, I will toss up half what I had.
Yuck, and yet, I did that last night alright.
**************
on a brighter note
My niece Annette turns 6 on the 18th. SIX! My goodness, she was just my little sweetheart with the chicken legs. Now she is going to be going into first grade in the fall. Time goes quickly.
Also, I got an Ipod and have been spending the past couple days loading my cd's onto it. I did not realize I had so much music. I can load 1000 songs, I am up to almost 700 already and I still have about 10 cd's left and four more I want to take out of the library.
My cruise is now 14 days away. I have all my clothes ready and drugs are set up. I got my passport and all I have to do is show up in Manhattan at 12th ave. and 55 th street at the pier with documents and luggage at hand. Its funny, someone who casually looked at my life would thing, "what the hell does she need a vacation for? She doesn't do anything that would need one." Hell, I work hard at dealing with my life. I am so emotionally exhausted from dealing with least of my doctors and illnesses, most of all with the damn government agencies. I long for my deck chair, ipod, book and fruity drink with umbrella sitting beside me. I want fantasy for 9 days. After that, I will be able to deal again with reality.
Jazz will be getting his summer shaving this week, along with yearly shots and such. He is little sweetie.
Well, time to take another pain pill. Oh, yeah, Wednesday I have an appt. with pain management doctors. Hopefully they will come up with something better than I am doing now.
Ta for now.
Migraines are worse than gunshots I believe. I am back taking Fueroset three times a day for the pains.
I wish I could live in water. Then my damned back would not hurt. I am so crippled today from the herniated disc I can't even stand up straight. I keep ice on it half the day and take the morphine the other half.
I am not sad, just so damn frustrated and angry at the uncertainties.
Pain just makes your life hell.
And my poor Jazz is such a sweetheart but I feel so angered that I can't run with him or like today, take him on a long walk. My aide took him out twice so he got the exercise but I want to be the one to do it.
After the tap though, two days of massive migraines and then free of pain for another two months. Well free of pain in my neck and head. My herniated disc, welll that is a crap shoot.
The therapy in the pool is wonderful and I am back to swimming twice a week, doing the PT and then laps. I am up to 16, almost back to a quarter mile.
If I did not have to get out of the pool, life would be easier. I get out and my left foot goes tingly and then numb. ARRGH!
Then, of course, I get really down on it all and binglet myself into coma with ice cream Low fat and low sugar, but dang, a quart goes down too easily. Well, not that easily, if the gastric band has its way, I will toss up half what I had.
Yuck, and yet, I did that last night alright.
**************
on a brighter note
My niece Annette turns 6 on the 18th. SIX! My goodness, she was just my little sweetheart with the chicken legs. Now she is going to be going into first grade in the fall. Time goes quickly.
Also, I got an Ipod and have been spending the past couple days loading my cd's onto it. I did not realize I had so much music. I can load 1000 songs, I am up to almost 700 already and I still have about 10 cd's left and four more I want to take out of the library.
My cruise is now 14 days away. I have all my clothes ready and drugs are set up. I got my passport and all I have to do is show up in Manhattan at 12th ave. and 55 th street at the pier with documents and luggage at hand. Its funny, someone who casually looked at my life would thing, "what the hell does she need a vacation for? She doesn't do anything that would need one." Hell, I work hard at dealing with my life. I am so emotionally exhausted from dealing with least of my doctors and illnesses, most of all with the damn government agencies. I long for my deck chair, ipod, book and fruity drink with umbrella sitting beside me. I want fantasy for 9 days. After that, I will be able to deal again with reality.
Jazz will be getting his summer shaving this week, along with yearly shots and such. He is little sweetie.
Well, time to take another pain pill. Oh, yeah, Wednesday I have an appt. with pain management doctors. Hopefully they will come up with something better than I am doing now.
Ta for now.
Monday, May 07, 2007
Keeping my life in kilter.
I have been organizing my things. Getting ready for the cruise. Making Dr. appts. Etc, etc.
On May 22 I will get my next Lumbar puncture. I am getting really use to it. 30 mg of valium and my favorite Radiologist. Three days of migraines afterwards and then off and running again for two months.
PT is going well. Jay, the physical therapist, has been working me very hard in the water. I end up with my shoulders aching afterwards. BUT... I can swim 10 laps without stopping now. Every day I am going to do a few more than the last day. I want to be back at a mile by Summer time.
While I am away my Mom is going to be down in Virginia helping out my SIL. My bro will be away in Israel giving a paper and lecture that week.
Jazz will stay with Georgiana and her boys for the 9 days. Jazz will be having a great time, he will have gotten his yearly rabis shot and tushy cleaning, (no I am not explaining that one), plus his summer cut.
So, life is level mostly.
I am losing weight.
I am taking care of my physical and mental/emotional being.
I am making sure that my mom is taken care of.
I am loving and caring for my Jazzy.
I love the way Mitchell smells.
I bought all new clothes in size 18.
I suppose I could ask for more in my life right now but I am happy for what I have and how I am living.
Every day I grow, harmony will eventually be obtained.
Not bad I say.
On May 22 I will get my next Lumbar puncture. I am getting really use to it. 30 mg of valium and my favorite Radiologist. Three days of migraines afterwards and then off and running again for two months.
PT is going well. Jay, the physical therapist, has been working me very hard in the water. I end up with my shoulders aching afterwards. BUT... I can swim 10 laps without stopping now. Every day I am going to do a few more than the last day. I want to be back at a mile by Summer time.
While I am away my Mom is going to be down in Virginia helping out my SIL. My bro will be away in Israel giving a paper and lecture that week.
Jazz will stay with Georgiana and her boys for the 9 days. Jazz will be having a great time, he will have gotten his yearly rabis shot and tushy cleaning, (no I am not explaining that one), plus his summer cut.
So, life is level mostly.
I am losing weight.
I am taking care of my physical and mental/emotional being.
I am making sure that my mom is taken care of.
I am loving and caring for my Jazzy.
I love the way Mitchell smells.
I bought all new clothes in size 18.
I suppose I could ask for more in my life right now but I am happy for what I have and how I am living.
Every day I grow, harmony will eventually be obtained.
Not bad I say.
Slowly.
Over the last week I have seen my scale creep in tenths of a pound a day downward. At first I wanted to throw the damn thing down 8 flights but now I am in a Zen mood with the scale. As long as it does not creep up then the machine and I are one....
I finally think I figured out one of the reasons I am attracted to Mitchell. His smell. It is hard to explain just what it is with his smell though. It just calms me down and makes me feel happy.
Go figure!
I finally think I figured out one of the reasons I am attracted to Mitchell. His smell. It is hard to explain just what it is with his smell though. It just calms me down and makes me feel happy.
Go figure!
Tuesday, May 01, 2007
Just a funny!
***This one just came to me from my friend Paula, who has a warped sense of humor...
In a number of carefully controlled trials, scientists have demonstrated
that if we drink 1 litre of water each day, at the end of the year we would have absorbed more than 1 kilo of escherichia coli, (E.coli) bacteria found in feces.
In other words, we are consuming 1 kilo of poop.
However, we do NOT run that risk when drinking wine (or rum, whiskey or other liquor) because alcohol has to go through a purification process of boiling, filtering and/or fermenting.
Remember: Water = Poop, Wine = Health
Therefore, it's better to drink wine and talk stupid, than to drink water and be full of shit. There is no need to thank me for this valuable information: I'm doing it as a public service.
P.S. Some of you have obviously had far too much water!
I don't know, I just got a good giggle from it. ;)
In a number of carefully controlled trials, scientists have demonstrated
that if we drink 1 litre of water each day, at the end of the year we would have absorbed more than 1 kilo of escherichia coli, (E.coli) bacteria found in feces.
In other words, we are consuming 1 kilo of poop.
However, we do NOT run that risk when drinking wine (or rum, whiskey or other liquor) because alcohol has to go through a purification process of boiling, filtering and/or fermenting.
Remember: Water = Poop, Wine = Health
Therefore, it's better to drink wine and talk stupid, than to drink water and be full of shit. There is no need to thank me for this valuable information: I'm doing it as a public service.
P.S. Some of you have obviously had far too much water!
I don't know, I just got a good giggle from it. ;)
In the morning, in the evening, ain't we got fun...
Okay Business and Leisure first:
This is the ship I will be on for my cruise:
http://www.carnival.com/Ship_Detail.aspx?shipCode=MI
Here is the deck plan: Empress deck #6227 mid way of the ship:
http://www.carnival.com/Deck_Plan.aspx?shipCode=MI
This is an example of the state room, but we will have two twin beds with the couch/pullout
http://www.carnival.com/CMS/staterooms/stateroomdetail_MI_OB.aspx
This is the itinerary:
http://www.carnival.com/Itinerary.aspx?embkCode=NYC&itinCode=EC7&durDays=8&sailDate=5/27/2007&shipCode=MI&sailingID=41909&subRegionCode=CE&rateCode=BCA
The following are possible side trips I would take:
St Thomas Virgin Island
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=STT&excursionname=Downtown+Shopping+%26+Beach+Getaway&excursioncode=434034
Tortola:
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=Tortola+Sightseeing+%26+Cane+Bay&excursioncode=435011
possible
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=The+North+Shore+%26+Pusser%27s+Landing&excursioncode=435010
possible
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=Long+Bay+Beach+%26+Lunch&excursioncode=435015
major possible
San Juan
Nothing really excites me
http://www.carnival.com/ShoreExcursionsSearchResults.aspx?portcode=SJU&portname=San%20Juan,%20Puerto%20Rico
I am so excited.
This is the ship I will be on for my cruise:
http://www.carnival.com/Ship_Detail.aspx?shipCode=MI
Here is the deck plan: Empress deck #6227 mid way of the ship:
http://www.carnival.com/Deck_Plan.aspx?shipCode=MI
This is an example of the state room, but we will have two twin beds with the couch/pullout
http://www.carnival.com/CMS/staterooms/stateroomdetail_MI_OB.aspx
This is the itinerary:
http://www.carnival.com/Itinerary.aspx?embkCode=NYC&itinCode=EC7&durDays=8&sailDate=5/27/2007&shipCode=MI&sailingID=41909&subRegionCode=CE&rateCode=BCA
The following are possible side trips I would take:
St Thomas Virgin Island
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=STT&excursionname=Downtown+Shopping+%26+Beach+Getaway&excursioncode=434034
Tortola:
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=Tortola+Sightseeing+%26+Cane+Bay&excursioncode=435011
possible
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=The+North+Shore+%26+Pusser%27s+Landing&excursioncode=435010
possible
http://www.carnival.com/ShoreExcursionDetails.aspx?portcode=TOR&excursionname=Long+Bay+Beach+%26+Lunch&excursioncode=435015
major possible
San Juan
Nothing really excites me
http://www.carnival.com/ShoreExcursionsSearchResults.aspx?portcode=SJU&portname=San%20Juan,%20Puerto%20Rico
I am so excited.
Monday, April 30, 2007
Sigh...
I am starting to get the headaches and dizziness again. I am beginning also to drag my left foot again and sort of trip with my right foot. No falling yet but I have the cane out just in case.
It has only been 7 weeks since my last spinal tap. I hate the thought that my body just won't resolve the Pseudotumor Cerebri like it did in 1997. I am okay with getting another tap before I go away at the end of May, but just the idea that the length of time between each one is getting shorter and shorter makes me a bit sad.
But, on the other hand, I get the tap about a week before the cruise and I will be fine for the whole trip. I can do as much as I want and not worry about anything.
So, deep Sigh, but also, a good outcome.
Enjoy your days.
S.
It has only been 7 weeks since my last spinal tap. I hate the thought that my body just won't resolve the Pseudotumor Cerebri like it did in 1997. I am okay with getting another tap before I go away at the end of May, but just the idea that the length of time between each one is getting shorter and shorter makes me a bit sad.
But, on the other hand, I get the tap about a week before the cruise and I will be fine for the whole trip. I can do as much as I want and not worry about anything.
So, deep Sigh, but also, a good outcome.
Enjoy your days.
S.
Saturday, April 28, 2007
Negative Nellies begone from our lives!
Sorry,
Just have to rant abit.
I cannot understand at all the need to curse someone when you can keep your damn mouths shut.
I get really disgusted and PO'd(keeping it clean here, thank you very much) when someone responds with a personal attacks, when someone, who clearly needs a positive word, is crying their eyes out, complaining about how miserable the world is, and in general thinks that a choice made was the wrong one.
So, she smokes, so she thinks her way of dieting is the best way. Big F'ing deal. She asks for a response to help her feel good about a decision and while most respond with kindness, a few knock her to her A$$. (Well, trying to keep it clean now).
Hurrah for the few who stood up and said to the negative nellies "Give us a break." I wanted to be one of them. The most I could do was PM the author and let her know I would be there should she want to vent and get a better handle on things.
Ya can't change the world, but you can change your world.
Ah, I feel better now.
**************
Oh, yeah, I am going on a Carribean cruise over the week of Memorial Day, got an amazing rate with two friends for a Balcony suite on Carnival ship Miracle.
9 days/8 nights. Leave NY, two at sea, San Juan, Tortola, Virgin Island, two more at sea.
First cruise. Can't wait. I want a deck chair and a fruity drink with an umbrella in it and a good murder mystery to read....
Just have to rant abit.
I cannot understand at all the need to curse someone when you can keep your damn mouths shut.
I get really disgusted and PO'd(keeping it clean here, thank you very much) when someone responds with a personal attacks, when someone, who clearly needs a positive word, is crying their eyes out, complaining about how miserable the world is, and in general thinks that a choice made was the wrong one.
So, she smokes, so she thinks her way of dieting is the best way. Big F'ing deal. She asks for a response to help her feel good about a decision and while most respond with kindness, a few knock her to her A$$. (Well, trying to keep it clean now).
Hurrah for the few who stood up and said to the negative nellies "Give us a break." I wanted to be one of them. The most I could do was PM the author and let her know I would be there should she want to vent and get a better handle on things.
Ya can't change the world, but you can change your world.
Ah, I feel better now.
**************
Oh, yeah, I am going on a Carribean cruise over the week of Memorial Day, got an amazing rate with two friends for a Balcony suite on Carnival ship Miracle.
9 days/8 nights. Leave NY, two at sea, San Juan, Tortola, Virgin Island, two more at sea.
First cruise. Can't wait. I want a deck chair and a fruity drink with an umbrella in it and a good murder mystery to read....
Thursday, April 26, 2007
This one is for Sharon (Theoslady on CK)
"It is astonishing how short a time it takes for very wonderful things to happen." - Frances Burnett
"Exert your talents, and distinguish yourself, and don't think of retiring from the world, until the world will be sorry that you retire." - Samuel Johnson
"If we have no peace, it is because we have forgotten we belong to each other." - Mother Teresa
Almost every day Sharon posts the most wonderful quotes. I hold many of them dear to me.
Sharon, I think you are an amazing lady. What you do, who you are, is give of yourself to others in their most dire of need and or circumstances.
If I could give you anything in this world I would give you one peaceful, totally easy going day.
Since I can't do that, I can just thank you for all you do.
"Exert your talents, and distinguish yourself, and don't think of retiring from the world, until the world will be sorry that you retire." - Samuel Johnson
"If we have no peace, it is because we have forgotten we belong to each other." - Mother Teresa
Almost every day Sharon posts the most wonderful quotes. I hold many of them dear to me.
Sharon, I think you are an amazing lady. What you do, who you are, is give of yourself to others in their most dire of need and or circumstances.
If I could give you anything in this world I would give you one peaceful, totally easy going day.
Since I can't do that, I can just thank you for all you do.
Wednesday, April 25, 2007
Where is the frutstration icon when I need it?
I HATE GOVERNMENT AGENCIES!
I go out this morning with my friend Andrea to help her out and I come home to find out someone from Social Services had come to my Mom's apt to question if I actually live with her. No notice at all.
I am glad Georgiana was here to help my mom out. "Tiny" as everyone calls Georgiana is the aid who helped my dad out his last year of life and helps me and my mom now.
So, she gave the man what for and will be with me when he comes again. I have to call the guy after 2pm and set up an appt. I don't mind the appt. I just minded the no advance warning. Like the damn Social Services department expects me to lie like that.
Scuse me Momma Bess...
BUT FUCK THEM.
It stressed me out so much I had to go and take a valium, something I have not had to do in almost a month.
I really hate goverment crap....
But, the day is sunny and breezy and I have PT in the pool today.
It could be lots worse.
Love ya all,
Have a joyous day.
I go out this morning with my friend Andrea to help her out and I come home to find out someone from Social Services had come to my Mom's apt to question if I actually live with her. No notice at all.
I am glad Georgiana was here to help my mom out. "Tiny" as everyone calls Georgiana is the aid who helped my dad out his last year of life and helps me and my mom now.
So, she gave the man what for and will be with me when he comes again. I have to call the guy after 2pm and set up an appt. I don't mind the appt. I just minded the no advance warning. Like the damn Social Services department expects me to lie like that.
Scuse me Momma Bess...
BUT FUCK THEM.
It stressed me out so much I had to go and take a valium, something I have not had to do in almost a month.
I really hate goverment crap....
But, the day is sunny and breezy and I have PT in the pool today.
It could be lots worse.
Love ya all,
Have a joyous day.
Tuesday, April 24, 2007
Getting my ducks in a row.
Morphine sucks. I mean it really helps my back but it makes me nuts.
Anyhow,
I just sent Mitchell an email, which I should have done a week ago, again thanking him for a great time. I also reminded him that since the weather is getting nicer, he should come down in the evenings and we could go walking on the boardwalk or the beach.
Oh, yeah, other things!!
I am one step closer to getting full "temporary assistance" through NYS Social Services. I got a paper in the mail a few days ago stating that:
"Sandra has been determined to be exempt from participating in Temporary Assistance work activities effective April 20,2007 because according to medical evidence she is currently unable to work due to a medical issue."
Part one down. I sent a copy to my disability lawyer to see if it will help getting the SSDI any faster.
Then two days later I get a letter from Social Services to have my "Board Certified" Neurologist fill out another medical form. This one was 4 pages long. Same damn thing as the last one but more details. This one will cost me $35 for my neurologist to do. I will be billing Social Services for this one!
So, I took over the forms today and also called my neuro opthalmologist because his office still has not sent paper work over to my neuro.
I am truly getting tired of doctors, lawyers, government agencies, etc. Why am I still having to prove myself?
Every day though, no matter how frustrated I get, I am happy in my heart because I have people in my life that make sure I am taken care of. So many people do not have the support system that I have. Over the past year I have developed the habit of trying to help someone or other who asks me for my knowledge. I am glad to give back in someway.
Anyhow,
I just sent Mitchell an email, which I should have done a week ago, again thanking him for a great time. I also reminded him that since the weather is getting nicer, he should come down in the evenings and we could go walking on the boardwalk or the beach.
Oh, yeah, other things!!
I am one step closer to getting full "temporary assistance" through NYS Social Services. I got a paper in the mail a few days ago stating that:
"Sandra has been determined to be exempt from participating in Temporary Assistance work activities effective April 20,2007 because according to medical evidence she is currently unable to work due to a medical issue."
Part one down. I sent a copy to my disability lawyer to see if it will help getting the SSDI any faster.
Then two days later I get a letter from Social Services to have my "Board Certified" Neurologist fill out another medical form. This one was 4 pages long. Same damn thing as the last one but more details. This one will cost me $35 for my neurologist to do. I will be billing Social Services for this one!
So, I took over the forms today and also called my neuro opthalmologist because his office still has not sent paper work over to my neuro.
I am truly getting tired of doctors, lawyers, government agencies, etc. Why am I still having to prove myself?
Every day though, no matter how frustrated I get, I am happy in my heart because I have people in my life that make sure I am taken care of. So many people do not have the support system that I have. Over the past year I have developed the habit of trying to help someone or other who asks me for my knowledge. I am glad to give back in someway.
Friday, April 20, 2007
Trying to catch up
Sorry, long week.
1. Lets just say that having to take morphine for my back pain does not make blogging easier, it just makes me sillier.
2. Okay, Momma Bess: there aren't too many detail regarding Mitchell and the comedy club date. I still have a good feeling in my heart. It was so nice to be surprised by someone. I always decide on things or just go for the easiest thing. I was able to do something completely different this time and it was Mitchell who thought enough about me to set it all up.
More later...
1. Lets just say that having to take morphine for my back pain does not make blogging easier, it just makes me sillier.
2. Okay, Momma Bess: there aren't too many detail regarding Mitchell and the comedy club date. I still have a good feeling in my heart. It was so nice to be surprised by someone. I always decide on things or just go for the easiest thing. I was able to do something completely different this time and it was Mitchell who thought enough about me to set it all up.
More later...
Wednesday, April 18, 2007
Finding Joy in every moment
Joy,
it is a very short word. Three little letters.
Strive for it every day. Joy makes life worthwhile.
Joy is infectious and should be spread around.
Joy. I love the word.
it is a very short word. Three little letters.
Strive for it every day. Joy makes life worthwhile.
Joy is infectious and should be spread around.
Joy. I love the word.
Sunday, April 15, 2007
Pignot Grigio and comedy
I had myself a wonderful time with Mitchell.
He took me to a comedy club called "Govenors" in Levittown.
Don't ask me the comedians name, I don't remember it but he was funny! He does his own stand up and then uses ventriloquism dummies for the rest. "Walter" is one of his characters and if you watch Comedy Central you probably have seen the act.
It was fun, funny, relaxing and I have definitely discovered the wine Pignot Grigio. Nice wine and I have a really good buzz going.
The nicest part though was being able to tell Mitchell just how perfect the night turned out.
It was raining really really bad but we went anyway.
It was also the first time when I have said "I love that you thought of me and I love you." that the man actually said back something. "I appreciate that." Not much of a response but it meant quite a bit to me.
I will write more when I get a good night sleep.
He took me to a comedy club called "Govenors" in Levittown.
Don't ask me the comedians name, I don't remember it but he was funny! He does his own stand up and then uses ventriloquism dummies for the rest. "Walter" is one of his characters and if you watch Comedy Central you probably have seen the act.
It was fun, funny, relaxing and I have definitely discovered the wine Pignot Grigio. Nice wine and I have a really good buzz going.
The nicest part though was being able to tell Mitchell just how perfect the night turned out.
It was raining really really bad but we went anyway.
It was also the first time when I have said "I love that you thought of me and I love you." that the man actually said back something. "I appreciate that." Not much of a response but it meant quite a bit to me.
I will write more when I get a good night sleep.
Monday, April 02, 2007
vacation?
Off to Virginia.
Everyone please,Enjoy your particular holiday
Be safe, be happy, and above all else
Let the concept of Joy into your hearts.
Back in a few days.
Love Sandra
(aka: girl child, aka: little sis, aka the mother of Jazzy, aka: Big Sis)
Everyone please,Enjoy your particular holiday
Be safe, be happy, and above all else
Let the concept of Joy into your hearts.
Back in a few days.
Love Sandra
(aka: girl child, aka: little sis, aka the mother of Jazzy, aka: Big Sis)
Saturday, March 31, 2007
Sigh
I will be, even though I am not so sure I want to, going down to my bro in Virginia for the week of Passover. Jazzy is being taken care of by a friend. I want to visit with my nieces, especially Ava, who is now almost 9 months old; go into DC for the Cherry Blossom Festival; and one or two museums, but I really don't care if I am around either of my brothers. Lately I just have been feeling like I do not exist to them.
I am going because I don't want my mom home April 4th, her wedding anniversary. I wish I could just put her on Amtrak and then come back here to Long Beach and crawl under the covers and ignore the entire week. Everyone is telling me I need to grieve more. Being with my family is going to be one big cry fest and I just don't want to be in the middle of it. I want to sit on the porch and listen to the ocean. I want to go downstairs to the apt's gym and just work out. I want to watch tons of videos and go to see a movie or two. I want to not make any decisions. I want a week to grieve in my own way, in my own time.
I just miss my dad...
********
I am tired. It has been one long friggin week. Wednesday I spent all day at Social Services in Uniondale sitting on my butt waiting to be called to have my application for Temporary Assistance and Food stamps. 9AM to 4pm.
Friday I had to go to Mineola, NUMC(Nassau University Medical Center or as I like to call it "Government bull shit Medical Center" to be deemed or not deemed unfit to work so I can get the Temporary Assistance and continue with the food stamps. Four hours there.
Today I had my triannual (?) defensive driving class and was sitting for another three hours.
I am tired, I am in pain, and my butt is so flat from all the damn sitting.
At least I have been using the gym downstairs. I use the bike and the work out ball for balance and crunches. I also, yesterday went for my first PT in the pool. I felt like a kid in a candy factory I was so happy to be back in the water again.
I did discover though that it will definitely be a while until I can swim laps again. My kicking back wards with my left leg is really difficult which means I would have a problem doing the crawl. Ah, well, all in good time.
So, to all, if I am going to Viriginia I wish a happy passover or/and a great easter.
Be back as soon as I can.
I am going because I don't want my mom home April 4th, her wedding anniversary. I wish I could just put her on Amtrak and then come back here to Long Beach and crawl under the covers and ignore the entire week. Everyone is telling me I need to grieve more. Being with my family is going to be one big cry fest and I just don't want to be in the middle of it. I want to sit on the porch and listen to the ocean. I want to go downstairs to the apt's gym and just work out. I want to watch tons of videos and go to see a movie or two. I want to not make any decisions. I want a week to grieve in my own way, in my own time.
I just miss my dad...
********
I am tired. It has been one long friggin week. Wednesday I spent all day at Social Services in Uniondale sitting on my butt waiting to be called to have my application for Temporary Assistance and Food stamps. 9AM to 4pm.
Friday I had to go to Mineola, NUMC(Nassau University Medical Center or as I like to call it "Government bull shit Medical Center" to be deemed or not deemed unfit to work so I can get the Temporary Assistance and continue with the food stamps. Four hours there.
Today I had my triannual (?) defensive driving class and was sitting for another three hours.
I am tired, I am in pain, and my butt is so flat from all the damn sitting.
At least I have been using the gym downstairs. I use the bike and the work out ball for balance and crunches. I also, yesterday went for my first PT in the pool. I felt like a kid in a candy factory I was so happy to be back in the water again.
I did discover though that it will definitely be a while until I can swim laps again. My kicking back wards with my left leg is really difficult which means I would have a problem doing the crawl. Ah, well, all in good time.
So, to all, if I am going to Viriginia I wish a happy passover or/and a great easter.
Be back as soon as I can.
Wednesday, March 28, 2007
Government agencies. Are they the devils work?
Government agencys suck. I know they are a necessary evil.
I spent 8 hours just to get a case opened so that I could get food stamps and emergency medicaid.
8 hours and now I have to go to one of the government doctors on Fridayat 9pm and then back to Social Services on April 10 for a final evaluation at 2pm.
Alright, at least I do have foodstamps now that will help me out with higher quality foods during each month.
I am exhausted.
I spent 8 hours just to get a case opened so that I could get food stamps and emergency medicaid.
8 hours and now I have to go to one of the government doctors on Fridayat 9pm and then back to Social Services on April 10 for a final evaluation at 2pm.
Alright, at least I do have foodstamps now that will help me out with higher quality foods during each month.
I am exhausted.
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